Karen left today for Kenya.
She will be there about a week, getting things in order to bring back Joan and her caregiver.
We are taking donations and planning fundraisers. If you'd like to be involved, please contact us at 314-504-4663 or use the Donate button below.
Portable Oxygen Concentrator received! Thank you so much!
Karen leaves Monday to pick up Joan and her caregiver.
Donations are still needed for medical care when Joan arrives.
Joan is on her way back to St. Louis...Karen leaves Monday for Kenya.
We need to find a "Portable Oxygen Concentrator," also known as a POC. Joan needs oxygen for the flights from Kenya to the US.
Does anyone have a used one we can buy?
To rent one is manageable, but the deposit to take it out of the country is more than we can afford! Please help us find a POC if you can!
We are taking donations and planning fundraisers. If you'd like to be involved, please contact us at 314-504-4663 or use the Donate button.
Three years ago after Joan returned to Kenya, her genetic testing showed that she has a rare form of muscular dystrophy called Collagen VI-related Myopathy. This causes muscles that are low in tone and weak, joint contractors (limited ability to move) and over time causes respiratory compromise as the muscles of respiration weaken slowly with age.
She has accomplished much since she left, passing her exams and going to high school and living in dorms, even though it was quite uncomfortable with her condition - she is quite a brave lady! The Kendagor's extended family has taken wonderful care of her and there is a 2-year-old girl and 1-year-old boy in the home that I'm sure she can't get enough of.
In the last 3-6 months, her condition has deteriorated further and it has become clear that the only way to get her any supportive care is to bring her back to the U.S. One of her legs swells daily and is painful. She wakes about every other night with shortness of breath/chest pain/headaches, from being low on oxygen. Please pray that in the days between now and when we arrive to get her that the orphanage family can obtain oxygen for her at night and a pulse oximeter. These common items are so rare in other parts of the world.
Dr. Mark Miller who cared for her when she broke her arm the summer before her departure in 2014, was very interested at that time in the prospect of tendon transfers in her lower legs to help her balance and walking to be easier and more comfortable. He remembers her and is still willing to care for our sweet Joan! This will likely start with PT and serial casting at the wonderful Shriner's Hospital that provides free care for their patients! We praise God for this door that he opened so easily just for the asking!!!
The surgery itself will have to take place at SLCH due to her weak breathing muscles and will be costly and followed by some days in the hospital recovering. Her neuromuscular specialist is at SLCH and it is likely she will need sleep study evaluations, cardiac work-up and pulmonary function evaluations, as well as some type of night time oxygen therapy.
We are committed to care for this special one that God loves and created for a meaningful purpose. Please give as you feel led by Him who has provided all!
Dr. Becky Bullivant, Joan's pediatrician
Joan is on her way back to St. Louis!
Joan's difficult health issues have increased recently and we are bringing her back to St. Louis ASAP for additional treatment. If you knew Joan from her first trip here in 2014, you definitely remember her!
We are taking donations and planning fundraisers. If you'd like to be involved, please contact us at 314.504.4663. Or donate below.
GTWO President, Karen Smith, took her first trip to Kenya, Africa in 2005. Soon after she began Get the WORD Out, Inc. Its foundation - God's Word (the Bible) changes lives.
GTWO is committed to showing the love of God to the remote areas of northwestern Kenya. Your donations will help support these vital missions.